Thursday, April 05, 2018


Orion woke up sick this morning, with a sore throat, cough, runny/stuffy nose. I cancelled the cath (it was set for next Tuesday) since they want Orion to be free of any symptoms for four weeks. It has been rescheduled to June 26, the kids will be out of school and Blake will be in camp. Hopefully this works out for the best. I'm pretty sure Orion was relieved, but he will have to face this again in a couple months. At least he will finish out his 5th grade year with fun and no worries! 😜

Thursday, March 29, 2018

We are at Stanford children's today, first consultation with the cardiologist, then MRI. I (Tawny) actually just left to go pick up Inara from school, while Bo is there with Orion. He has been getting tired quickly after exercise, just a few minutes of running will get his SATs to drop down to the low 80s. They are hypothesizing that his FPO/ASD is leaking too much oxygenated blood out, causing him to fatigue. He has a cardiac catheterization scheduled for April 10, they want to balloon the FPO to see if that improves his oxygen levels. If it does, they will put in a device to close the hole. If he doesn't need it, or if the device is too large (it's about the size of a quarter), they will check back on him in a year or two. Brief post, I'm in the car pick up line to get little Indy! Will update again :)