Wednesday, February 18, 2009

super sick and then some

the last few days have been very rough for orion. he had a fever, the highest being 102.5. his medical team has always advised us to call the hospital if it was ever 101 or higher. right away, i gave him tylenol and tried wiping his body down with warm washcloths. after no success, i called my mom and she suggested using a mixture of rubbing alcohol and water. that did the trick! aren't moms amazing?! his fever dropped to 100.5 and stayed around there for the rest of the day.

the next morning, we took him to the pediatrician's office, and though our ped was out that day, we saw another doctor in the office. after checking his lungs and ears and seeing there was no congestion anywhere, we were sent back home. his fever never came back, but his cough got way worse. last night, he was coughing nonstop all night. the poor guy did not sleep at all, and neither did we. we went back to see our pediatrician this morning, and she said his cough was sounding more like he swallowed something he shouldn't have. she sent us to the hospital to go get xrays, but they did not find anything that would be blocking his airways.

orion was able to get some sleep today, but he has not eaten anything at all. he just drinks water or apple juice, and if he does eat, all he wants is kix (hey, that's better than nothing).

so we are going back to our pediatrician again tomorrow so she can see if he's gotten better or not. if it's still the same, then we are off to see an ear, nose, throat doctor, in which they can look in his throat with a camera. i think his cough is sounding more wet though, and his nose is back to runny again, so maybe this cold got a second wind :( either way, orion is miserable.

on a last note, i fed him rocky road ice cream yesterday afternoon, a few hours before this nonstop coughing started. i usually avoid the nuts when feeding him, but one snuck in his mouth, and i watched him chew it. i figured he was fine if he could chew and swallow. now, i realize that maybe a small little piece could be stuck in his throat which is causing him to cough. sigh....i am so mad at myself!!!! i feel like i have caused him all this misery. let's hope tomorrow will be better and we will figure out what's going on with orion.

Saturday, February 14, 2009

cold getting worse

orion is now coughing a ton, sneezing through the day, but his runny nose is mostly gone. i am also guessing he has a sore throat because he keeps rubbing his neck, and he is still grabbing at his ears. he had trouble falling asleep from all the coughing, and then he even threw up! i don't know what that's about. i'm sure if it continues, we'll be back at the doctor's on monday.

i woke up sick this morning, mostly feeling like my whole body was achy and i am coughing again. i slept in while bo played with orion, but now bo is sick!!! vicious cycle in this house. we should have worn our masks!!!! oh well.

sunday is LPCH's heart party that they have every year. all the cardiac patients and their families are invited to the park for a potluck party and lots of games and activities for the kids. we missed it last year because we were in orange county to celebrate orion's first birthday. hopefully we will be well enough to attend tomorrow!

we got a couple of videos of orion today. i will ask bo to post them later.

Thursday, February 12, 2009

orion IS sick!!!

he was sneezing all day yesterday and woke up with a runny nose today. the last couple of days he was scratching and pulling at his ears, so we went to the doctor today to get it checked (plus get his synagis shot!). it's just a cold, and his ears are congested, but no fluid so no infection. thank goodness! hopefully he will be in good spirits and the cold will not get worse.

we have early start tomorrow afternoon and then we are headed out to a far away place to pick up a dining table with chairs that i found on craigslist. our poor dining table has been beaten with teeny spoons and forks, so i opted for a plastic-like table top that also has rounded corners. no more head-bumping! the new table is kinda funky old school, something you'd probably find in your parents' home, maybe even your grandparents. haha. i guess we are becoming more retro-vintagey and less IKEA these days. boy, we are getting old!!!

well, i am headed to bed because the monster just fell asleep (yup, at 11pm). what are we going to do with this kid?!

Wednesday, February 11, 2009


we've decided orion must be teething. the fever he had only lasted the night, and he has been very drooly the last few weeks. after his echo and seeing that his heart is essentially unchanged, we knew he wasn't sick with anything. so.....we are just bearing it with his neverending whining, crying, and complaining.

he still has two leaky valves - one is his tricuspid valve and the other is his artificial valve. i didn't really ask what the negative impact is with this leaking, but it's very minimal so i left it at that. they are keeping an eye on those two valves, and our next echo appt is in may. then in september, he will have another heart cath. that will mark one year since his last surgery! though september sounds far away, it doesn't feel like it to me. i really don't like when orion has these procedures done as an outpatient because they send him home immediately afterwards. isn't that crazy? they put him under, do the cath (which is usually about 2-4 hours), they bring him back to day surgery to recover, and then we can take him home as long as there isn't any bleeding. it's just awfully weird to go home right away because he is so loopy and out of it. from our last experience, it took nearly two weeks for his body to become normal again and get the anesthesia out of his body. his usual symptoms are a lot of crying, clinginess, no eating, no sleeping, etc, so as you can see it's kind of tough. but i'm sure he (and us too) would rather be at home than in the hospital!!

other than that, everything seems to be on track at home. i think orion has been having more trouble sleeping since our appt. he tends to be traumatized and i wouldn't be surprised if he has been having nightmares about the visit. hopefully this will all pass soon.

bo is still busy with work as usual, which is great during this crazy economic time. we are working on moving, once that is finalized, i will post more details. we plan on going to la next week so bo can have a track day with anson and the subaru group and also have a family birthday party. we are also having our taxes done down there.

not much else to report. our appts have definitely gone down now that orion doesn't receive physical and occupational therapy anymore. though we absolutely loved taking him to the school for these therapies, we know he doesn't need it and is doing just fine. it's almost weird not to have any appts, i never know what day it is now! he is still receiving early start services, and we finally got started with a new teacher because our last one was crap. after our initial visit, she says he will probably not qualify anymore because he seems to be way ahead for his age. so nice to hear!!! i HATE having other assessments done where they tell me he is so behind, delayed, etc etc and make me feel like a bad parent because i'm not doing enough. those are the assessments done in a clinical office with staff in white coats and not friendly at all. of course kids aren't going to do anything for you! anyway, i am blabbering. we are happy to see orion is developing on schedule and doing great. yay!

i am on my second load of laundry and now it's time for dishes and cooking :)

Monday, February 09, 2009


orion is sick with a fever. he woke up this morning at 1am not feeling well. this is explaining a lot! he hasn't been himself all week, and starting thursday, you can see blueness in his lips and face. other than that, personality wise he still seems the same. we have an echo monday morning, so we did not take him to the doctor right away. we figured we would find out why he was turning blue when we saw his cardiologist. this reminds me of about 6 months ago, when he just out of nowhere, turned very blue - his lips, face, hands and feet. the next day he was diagnosed with roseola. so we know this must be a virus that he has, and hopefully it is not heart related.

the echo is in the morning at 8am, so we will post updates! we have been pretty nervous about it since his last echo was in october. hopefully there are no changes and that this blueness is due to a virus!!! darn, we try so hard to keep our home and ourselves germ-free, but i suppose it's not 100%.

Saturday, February 07, 2009

continued prayers for the mark family

andrew passed peacefully earlier today....please continue to send prayers to the family....

Thursday, February 05, 2009

Please pray for my friend Andrew and his young family

Our dear friend and his family have been fighting cancer for the last few years. Im writing this post with a very heavy heart as the doctors have now said he has hours left. Please pray for him and his family:

quoted form their blog:
Pray that the Lord would continue to sustain Andrew's life and if it is in His will that He would show His glory through a miraculous healing. Pray that the Lord would give Grace strength and peace, and also the same for the family surrounding them right now. And pray for wisdom and clarity of mind for the doctors...

Please pray especially for comfort, strength and peace for Grace(his wife), Gracie and AJ(his children).

click here for their blog