Thursday, January 29, 2009

neurology clinic visit

things have definitely been busy all month, so i will start with today, then work my way backwards!

we saw orion's neurologist today for a follow-up. since orion hasn't had any seizures since his last incident in march of 2008, he is going to slowly be taken off of keppra over the next 4-6 weeks. now first, the news sounds great because less meds the better right? but at the same time, it could cause him to have seizures then we'd have to put him back on it. i'm really hoping for the "less meds" idea, i don't know what i'd do if he had a seizure at home.

the doctor also said to never leave him alone in water, not even for a second. he said that is usually the saddest case when kids have seizures and they are in the bathtub or in the pool. honestly, i hate teaching orion that he has certain limitations, but i suppose it is a part of his life. it definitely makes me sad, but i know it is for the best and he will grow up to learn what is safe/isn't safe for him to do.

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