Saturday, May 31, 2008

TAWNY is sick in bed!

i'm so anxious to sterilize this entire apt because the stomach virus has now been passed on to me. but bo is making me stay in bed so i can rest up and get better faster. i can't stand a germy house, plus we are trying to get orion's room decorated, things are in a bit of a shamble. but i will listen to my hubby and hang in bed with my laptop.

orion is doing much better now, and his cath was rescheduled to june 9th. dr. perry wants to do it himself, and he will be out of the country in june, so he said the sooner the better. argh, i guess it's best to just get it over with. i just hate seeing orion in the hospital and having to go through yet another procedure, especially so soon. it has to be done eventually though. soooo....i am PRAYING things go well so we can go to OC for stephen's graduation!! i care about him more than he probably thinks i do, and i'm really excited to see him walk - it's a big accomplishment! very proud of him :)

grandma aye was just here, she spent some great time with orion. she arrived with tons of books, and he said so many new words while she was here! he was gesturing to get out of the highchair, so i told him to say "mama up" so he said "up." he's been saying "daddy" lately which is a great step up from "dad" - two syllables is awesome! then he pointed at my hair and it sounded like he said "airplane"? not sure about that one. i also asked him "where's your nose" and he touched his nose. i know he said another two-syllable word, and i can't believe i don't remember it right now! anyway, he's doing pretty great. i've been worried about speech delays, but he came a long way just in the last two days.

anyhow, we will keep you posted on orion's cath and what the results are. have a great weekend!

Friday, May 30, 2008

GO TRISH!

my beautiful friend tricia shelton is participating in a marathon to raise funds for The Leukemia & Lymphoma Society this sunday. she has been training since december, and this is a HUGE commitment for her on top of finishing school and fundraising. please send love and energy her way this sunday - her goal is to finish the 26.2 miles in 5.5 hours.

to make a donation, please visit her site through team in training. this girl has definitely been an inspiration to our family, and her spirit has always kept our spirits up during our rough times. send her your support!

cheering you on from the bay, trish!!!!

Saturday, May 24, 2008

it's been a while!

orion has been keeping us quite busy! after several days of not being himself, not eating, sleeping too much, crying a lot, and turning blue (for the first time!), we took him to the ER. his echo, chest xrays, and blood work all came back fine, so doctors concluded it could be early symptoms of his heart working too hard. they decided he needs a cath sooner, so it was scheduled for june 9.

after his ER visit, he seemed to be right back to normal! my (tawny) parents came to visit for the weekend, and orion was in love. he was the happiest, hungriest, most energetic kid we've seen in a long time. the day they left though, he got sick with a stomach virus (which he still has) and went right back to sleeping too much, not eating, etc. of course at least we know it's just a virus and not anything heart-related. we also saw his cardiologist who said orion will most likely need the glenn. we'll find out after the cath if he needs the glenn or not, if he does, it will probably be soon after. so not looking forward to another surgery!!!! :(

LPCH dictionary: Glenn shunt - A surgical connection between the superior vena cava and the right pulmonary artery, allowing oxygen-poor (blue) blood to flow into the lungs.

since he's been sick, the cath got changed to june 16. this conflicts with our plans of going down to OC for stephen's graduation on june 18. what to do....we are hoping we can reschedule the cath if orion doesn't need it immediately, so we can make it to the graduation (and i can finally get my haircut from my girl gina. i am so dying for a cut).

here are some pics of orion from tonight's dinner. we had rice noodles with pork-stuffed tomatoes, vietnamese style. he was VERY happy to be eating something other than pedialyte and crackers. notice the single noodle on the chair next to him. he really loves to throw his food. you'll find many more noodles on the floor below him too.









Saturday, May 03, 2008

our little monk



it's definitely warmer down here in the suburbs, so we opted to buzz orion's hair for both the weather and for thicker hair. it's a burmese tradition to shave/buzz so he'll grow up with a nice head of hair :) hope it works!

we are having a good time in our new hometown, though we have to admit we sometimes forget we are not in the city anymore. for example, we've been so used to wood floors and no nature outside, but with our carpeted floors and tons of trees, grass and flowers around us, we are bombarded with pollen and dust! talk about allergies. since moving here, the three of us are constantly sneezing with runny noses and itchy eyes. we dyson regularly, and it seems to getting better, but there's nothing we can do about nature. we also took a walk across the street and stood at the crosswalk waiting for the sign to show the little green walking man to let us know we can cross. after 3 consecutive lights, i was like, man! this is a long light. and bo said, "we forgot to push the button!" right. in the city, there are no buttons to push because EVERYONE walks. not the suburbs! so we have to get used to that again.

orion's visits to the pediatrician and cardiologist were pretty blah, which is a good thing! he has another check up in a month with both of them again, and the cardiologist will keep on checking his health to see when he will need a cath (sometime in the next 3 months). even though it's not a major surgery, it still isn't fun because he still needs to be put under and there are always risks. they need to check the pressures in his heart to see if he will need that glenn procedure or not. let's pray he will not need another surgery.

bo has been terribly busy with work, but it's always nice to have money coming in right? i have been busy trying to keep the house nice and fridge filled, and also trying new recipes because i realize now that orion definitely needs variety in his diet. he does NOT like eating the same thing twice in a week. so......if anyone has recipes they want to share, please do!!! so far, he's liked turkey meatballs with asparagus, capellini with alfredo sauce, rice and mushrooms, and for snacks, he likes raspberries, TJs veggie sticks, TJs belgian waffle cookies (300 calories for 6 cookies!), and walmart's version of gerber puffs (yeah! 50 cents saved). i also realized, because of karma i'm sure, he prefers to eat while playing on the floor. just like me when i was a kid. my poor mom. i was such a horrible eater. never would i finish my plate. never could i sit at the table and eat an entire meal. i only ate if my mom made mealtime into a game, for instance, i would ride my tricycle around the house and have to stop for "fuel" and have a spoonful of my meal. so that's what i'm doing now. our little orion is just like his mommy. at least he eats better though.

we have been spending a lot of time (whether on the phone or in person) with the lewis family, and we love them! so much i dreamed that little elizabeth was my daughter??? we were playing patty cake. maybe it's my subconscious saying i want a little girl. either way, we love her like a daughter! we do miss our usual visitors like tina. i'm hoping we can take a trip up to fairfield and visit her. orion misses you for sure, tina!!

our apartment is coming together nicely. though we are still trying to figure out where things go, we have pretty much settled in and plan to stay here for a while. it's a nice neighborhood, i love taking walks down the street and looking at all the pretty million dollar homes we are surrounded by. orion enjoys touching all the greens and flowers and pointing at the big trees. he's adjusting well to the suburban life, as am i. we miss sf sometimes, but we know this is the right place to be.

which brings me to good news, congrats to stephen for getting into SF state!!!! orion's uncle will be hanging up here with us, so it will be great for them to spend more time together. it will be nice to have an aye in the area :) i always love to take care of family, so i'm happy to have someone to look out for. more family meals and hangouts!

ok, i think it's time to get back to cleaning. we have tons of new pics to post, so when bo's life slows down a bit, he'll upload. hope all of you are doing well and enjoying spring!