Sunday, March 30, 2008

today was a long, rough, emotional day

orion was doing pretty good yesterday and last night. they started weaning him off the meds so they can finally take out the breathing tube in the morning. well, this morning he started to have mild seizures. they were slight uncontrollable movements of his left arm and both his legs and feet. doctors gave him anti-seizure meds until they stopped, and he hasn't had any more since. they did a head ultrasound, and there was no sign of bleeding. they also checked his head for any swelling, which they found none. relieving news. doctors say they seizures are most likely from all the medication he is on since it has never happened at home or in the past.

on the inside, bo and i were dying. bo is definitely stronger than i am, and i nearly fell apart. today was probably the hardest day i had while being here. standing next to orion, i just couldn't bear it, and i left the room to sit with semone. she was definitely comforting. i began to text friends to see if they can visit us right away since i knew semone and the boys would be heading back home. thankfully, kathy came so fast, and seeing cute little lizzie brightened my day and gave me laughs. next came chris and sara with tasty vietnamese sandwiches (always a favorite in our house). great company as usual, and the visitors continued! tina and michelle came and caused their typical ruckus. they supplied us with awesome dim sum and a cheesecake! way to go tina, thanks for fattening me up! and our last visitor for today, my wonderful loving brother anson. after i called him with the news, he pretty much packed up his bag and headed up here. he'll be hanging out for a day or two.

keep continuing your prayers. this minor excitement this morning sets orion back a little bit because they want to keep an eye on him and make sure no more seizures continue. he is still on the anti-seizure meds, so please wish for no more seizures! they are also planning to take the breathing tube out tomorrow, so let's hope that plan falls through. neurology will be coming by in the morning to decide whether or not orion needs a CT scan (doctors aren't sure if all this radiation exposure is necessary since he had an MRI not too long ago).

phew. what a day. so emotionally exhausted, i took lots of naps, and i had a very hard time being in the room with orion. i spent most of my time outside his room and enjoyed the comfort of company. i am now spending the evening with him, and he's mostly sedated yet waking up and looking around with sleepy eyes. he likes to hold anyone's hand, so my legs are getting worn out from standing and holding his tiny hand!

well, i still need to eat dinner and get some rest. we will post more as we learn more. thanks to everyone for their thoughts, love, and prayers. please continue to send them our way!!!

12 comments:

Michael said...

Our thoughts and prayers are with you all. Let us know if you need anything.

Michael, Avvy, Maya and Emily

Anonymous said...

Hi Kiddos! I have sent out e-mails to everyone I know to send positive energy, love, light, and prayer to you and Orion. Plus, I am doing my part too and meditating daily with deep concentration on you all. Those friends have friends that are sending positive energy too (Reiki). Let me know how to help.

Love, Trish

cheryl mezzetti said...

Keeping your family in my prayers.

sending a hug too

Little Baby Manning said...

oh, i'm so sorry to hear little orion and you guys have had a set back ... my heart just sunk when i read your blog.

but now (as we all know from these crazy hospital journeys) it is what it is and work from here. and you better believe you've got a lot of people (you can tell from the comments and your visitors), who are right by your side praying and pulling for you and little Orion. Bless you and your family! We will definitly pray that Orion's body can be at peace and that he will continue to heal and have a full recovery.

Lots of love from vegas.....

Michelle said...

Oh lil'O, tons of prayers toward your way for a speedy recovery so you can come back to therapy and PLAY!!! I'm sending tons of faith, hope and strength to you, your mom and your dad.

~Michelle Marcial, OT

Anonymous said...

Oh guys... I feel so sad for you...
I'm sorry...

I can just feel your pain and heartache....
we've been thru our most scary times at Stanford ...
I've gone into that bathroom in the family room and dropped to my knees begging and pleading God for a miracle.
My heart breaks for you...

I will keep you in my prayers...
I pray that your sweet baby will be getting better day by day... and home to the loving arms of his family.

Please know we think of you and we care...

Mike, Terri and Magoo King
Las Vegas

christine adolph said...

Thinking about your family big time!!
xo-Christine

Toni said...

Dear Family -- Christine Adolph's blog directed me here, where I wanted to say how beautiful Baby 'O' is ... and the obvious love of his parents and extended family/friends will go such a long way in assisting recovery. All strong spring energies coming to your family: full of blooms, colors, sweet scents, & refreshment.

Anonymous said...

Keep strong and positive through it all...perhaps lil Orion is telling you "I'm ok Mommy & Daddy" when he is holding your hand.
It helped me hear similar stories to Angelina's when she was is the hospital. She too had seizures, I know those feelings of wondering what she was feeling and how they would affect her... they haven't! Your Orion looks like a strong little guy! Believe in the power of prayers and positive energy, you obviously have so much coming your way! Take care of yourselves!
Loving thoughts and prayers from the Adame family

Anonymous said...

Sending positive thoughts, prayers and love your way.

Suzanne and Ashley

Valonda L. said...

I read about Orion on Christine Adolphs blog. My heart breaks for you, and I know Gods does too. He cares so much. I will be praying for Orion and for each of you. May God give you all that you need.
Blessings,
Valonda L.

happydays525 said...

Just wanted you to know that I am sending prayers up for you all and your little one at this time. ((Hugs)) to you all too...