orion was doing pretty good yesterday and last night. they started weaning him off the meds so they can finally take out the breathing tube in the morning. well, this morning he started to have mild seizures. they were slight uncontrollable movements of his left arm and both his legs and feet. doctors gave him anti-seizure meds until they stopped, and he hasn't had any more since. they did a head ultrasound, and there was no sign of bleeding. they also checked his head for any swelling, which they found none. relieving news. doctors say they seizures are most likely from all the medication he is on since it has never happened at home or in the past.
on the inside, bo and i were dying. bo is definitely stronger than i am, and i nearly fell apart. today was probably the hardest day i had while being here. standing next to orion, i just couldn't bear it, and i left the room to sit with semone. she was definitely comforting. i began to text friends to see if they can visit us right away since i knew semone and the boys would be heading back home. thankfully, kathy came so fast, and seeing cute little lizzie brightened my day and gave me laughs. next came chris and sara with tasty vietnamese sandwiches (always a favorite in our house). great company as usual, and the visitors continued! tina and michelle came and caused their typical ruckus. they supplied us with awesome dim sum and a cheesecake! way to go tina, thanks for fattening me up! and our last visitor for today, my wonderful loving brother anson. after i called him with the news, he pretty much packed up his bag and headed up here. he'll be hanging out for a day or two.
keep continuing your prayers. this minor excitement this morning sets orion back a little bit because they want to keep an eye on him and make sure no more seizures continue. he is still on the anti-seizure meds, so please wish for no more seizures! they are also planning to take the breathing tube out tomorrow, so let's hope that plan falls through. neurology will be coming by in the morning to decide whether or not orion needs a CT scan (doctors aren't sure if all this radiation exposure is necessary since he had an MRI not too long ago).
phew. what a day. so emotionally exhausted, i took lots of naps, and i had a very hard time being in the room with orion. i spent most of my time outside his room and enjoyed the comfort of company. i am now spending the evening with him, and he's mostly sedated yet waking up and looking around with sleepy eyes. he likes to hold anyone's hand, so my legs are getting worn out from standing and holding his tiny hand!
well, i still need to eat dinner and get some rest. we will post more as we learn more. thanks to everyone for their thoughts, love, and prayers. please continue to send them our way!!!