it's been a busy month and a half, and things have been pretty crazy. we brought orion home on march 23, and he's been loving life at home. no nurses to bother him, no poking with needles, no doctors waking him up in the middle of his naps (though he likes to wake us up in the middle of our naps!). he came home with the NG tube, and we fed him via that for about two weeks. after putting on lots of weight and eating well by the bottle, bo pulled the tube out with permission from our cardiologist.
orion was doing great, up until a week ago after his immunization shots. he was showing unusual symptoms, such as sweating, breathing a bit heavier, lots of congestion and coughing, poor feeding, and major crankiness (he's normally a pretty mellow kid and doesn't cry much). he had nights of endless crying, and we just weren't sure what was going on. after a few calls to the doctors, we realized it couldn't be typical symptoms of the immunization shots. friday afternoon (april 27), we called our cardiologist again, and he recommended we take orion to the ER since the clinic was going to close soon. we rushed to the hospital, brought him in, they ran a test that showed possibly not enough blood flow to his heart muscle. they wanted to keep him overnight so they can monitor him and run another test the next day. saturday came around, and again, they wanted to keep him for another night, so now here we are on sunday. orion just had his third test done, and we are waiting for results. orion is sleeping, bo is sleeping, and i'm exhausted from having restless days and nights in this place.
other than these last several days, orion has been doing great. he smiles at us, laughs, loves to kick his cute little feet and punch the air (and sometimes accidentally his face) with his strong arms. he loves to eat, loves to sleep, loves daddy's singing, loves mommy's arms, and absolutely adores his fun mobile (thanks auntie kim and uncle nic!). he enjoys trips to ikea, trader joes, and target, and he especially likes the car rides on the way to these places because daddy drives so fast. he hates wet diapers, diaper changes, not being wrapped up tight enough in his blanket, not being held, and he definitely hates waiting for his milk to be warmed up. he gets grumpy when the pacifier falls out of his mouth, and he cries when the mobile turns off on its own. orion is a great little guy, emotional in all his glory.
in addition to taking orion to the ER, last monday i had to take bo to the ER. he was having the same chest pains he had when he last went to the ER. fortunately, he was not admitted to the hospital and will just need to follow-up with the appropriate doctors. so we've had quite a week for the aye team, but we are all staying strong and getting through these hurdles one day at a time.