Monday, February 26, 2007

Orion is in Surgery

Orion went into surgery today at 1:40 pm, a little more than an hour ago. Five months of anticipation has led to this moment. We were lucky to find out at 18 weeks. The shock to go through so much( Labor, Neonatal ICU, ventilators, respirators, tubes and wires coming out of our baby, and open-heart surgery) in such little time is unimaginable. We are lucky to be here at this hospital, with the best specialized care, from the nurses to the administration. We are lucky to have the surgeon that we have: the best in the world. But, as most people in medicine know, it takes good doctors, a fighting patient, and a little luck to get through situations like these. Thats what we are hoping for, a little luck.

His heart problems are worse than prenatal anticipation. He has some metabolic problems, and other complications due to both his heart condition and the meds saving him. Originally, the diagnosis before birth was that his right ventricle was to small and it should be just bypassed. The work of pumping blood though orions lungs and body was going to be left to the left ventricle. At birth his left ventricle, although pumping fine, was abnormal. It was not in a condition to handle supporting his whole bodyand lungs as previously planned. The muscles in the LV were "non compacted" and formed abnormally. So now the plan changed: they are almost forced to save the right ventricle, open up the missing valve area, and hope it will grow to a useable size so it can at least do some of the pumping work. That way, if the left heart does get weaker after time because of its abnormality, it will not be the only one carrying the load. But this also gives us hope, because Orion will now have a chance at a 4 chamber heart.

Despite all this, we are in high spirits. Orion has received so much love. Not just from his immediate family, but from everyone who has heard his story and ours. Their love and support will carry us through this, it will carry Orion through this.

Right about now, Dr. Reddy's team should be starting the first incision of the chest cavity, and I will start to pray for nothing to go wrong with the procedure and that things will be set in motion for a healthier heart. We love you all, as this is the moment we have all been anticipating. Please pray for our baby boy.


Orion going into the O.R.

5 comments:

smlmammal said...

You guys are always in my thoughts and prayers. I pray for all of you to have strength.

Anonymous said...

I'm keeping you all in my prayers. Your strength is amazing and I know it will help little Orion have the power to make it through all this with flying colors. Trish-

Anonymous said...

What a darling family you are! We were so glad to meet you all at Stanford and will continue to pray for baby Orion. We have so much faith in the staff at Stanford and know that they will take the best possible care of Orion - we will look for updates and can't wait until the day you take your sweet baby home! Heart Hugs-
Lisa and Justin Manning (Cole and baby Mason)

Terri said...

Hum... I thought I posted here??
I wrote a long message to you...
too bad...

I am writing to you from Las Vegas... I know the Mannings... they sent me over..

We spent 3 months at Standord and our baby had 2 heart surgeries there... you could not be in better hands....
Dr. Frank Hanley did Matthew's...
the CVICU is wonderful... we love them all!

I will be back to check in on you..
Our thoughts and prayers are with you...

Mike, Terri and Matthew King
www.whomagoo.blogspot.com

I have added you to my "heart kids" blog list.

Anonymous said...

Bo & Tawny,

I hope all is well. We are praying for you & your sweet son daily. Stay strong!

Justin