His heart problems are worse than prenatal anticipation. He has some metabolic problems, and other complications due to both his heart condition and the meds saving him. Originally, the diagnosis before birth was that his right ventricle was to small and it should be just bypassed. The work of pumping blood though orions lungs and body was going to be left to the left ventricle. At birth his left ventricle, although pumping fine, was abnormal. It was not in a condition to handle supporting his whole bodyand lungs as previously planned. The muscles in the LV were "non compacted" and formed abnormally. So now the plan changed: they are almost forced to save the right ventricle, open up the missing valve area, and hope it will grow to a useable size so it can at least do some of the pumping work. That way, if the left heart does get weaker after time because of its abnormality, it will not be the only one carrying the load. But this also gives us hope, because Orion will now have a chance at a 4 chamber heart.
Despite all this, we are in high spirits. Orion has received so much love. Not just from his immediate family, but from everyone who has heard his story and ours. Their love and support will carry us through this, it will carry Orion through this.
Right about now, Dr. Reddy's team should be starting the first incision of the chest cavity, and I will start to pray for nothing to go wrong with the procedure and that things will be set in motion for a healthier heart. We love you all, as this is the moment we have all been anticipating. Please pray for our baby boy.
Orion going into the O.R.